Author: Lynn Vigo, MSW, LICSW

The Autism Blog turns 6!

Another year has come and gone and we have much to celebrate. First, our thanks to you, our 1000+ subscribers who let us know you find the information in our posts meaningful to your lives. 

Next, thanks to our providers and to our guest authors who take time from their busy schedules to write or film content for a blog. A special thanks to Kylie for filming Raphe and Jim for our blogcast and to Emily for her Ask Dr. Emily blog column. We’re a small but dedicated team and we look forward to another productive and successful year ahead.

 For the second year in a row Healthline has named our blog as a top Autism Blog!!

 

 

 

 

 

 

 

Mindful Monday – Color Me Calm

 

One easy way to help self-regulate when feeling overwhelmed with a flood of thoughts or feelings is have a focal point to help screen out the brain clutter. A mantra (word repeated over and over) in meditation serves this purpose. How about when you’re in the midst of your busy day and can’t take a break to sit and meditate? Try a mini-meditation!

A focal point might be a repeated word (“driving”, “breathing”) or it could be a color (such as green or blue when you feel a need for calm, yellow when you need focus) or it could be a sound (a bell or chime) to gently remind you to slow down in mind and body. Give it a try!

Parallel Paths: Our Life with Autism

Ten years ago, as a new employee in the department of Psychiatry and Behavioral Medicine, I was asked by a colleague to present with her to a group of trainees.

She was to cover diagnostic evaluations and I was tasked with discussing the impact of autism on families. How on earth would I manage to accurately capture the daily challenges that often are not observed in brief clinic visits?

My hope was to help them to “get it” meaning to see just how difficult it was.Short of suggesting we hold the session in my home for a first-hand look, I decided to make a video I called, “A Day in the Life with Autism” 24 minutes representing 24 hours in our unconventional life. It was well-received and since then I have been asked to share it with many different providers and students at Seattle Children’s and the University of Washington.

So much has changed in the past decade that it felt time for an update. This time though, I wanted to capture the bigger picture of our life and the lessons learned not only for providers but for parents who walk this path too.

Savvy Mom Moves Science Forward: ADNP and Autism

Parents of kids with autism typically are told that we do not know the cause of it. For some, we eventually do and often it is at the insistence of parents that we figure it out.

Sandra Sermone knew there was “something” with her son and persisted in finding clues and then answers to what “it” is – a rare genetic condition that underlies his autism diagnosis. Taking matters into her own hands, she found a researcher in Israel to help and formed a group of fellow parents whose children have this condition. From there, she began to look for common denominators amongst their children. To read more of Sandra’s incredible efforts, check out these links to her scientific paper and a news story on her family:

NCBI :Premature primary tooth eruption in cognitive/motor-delayed ADNP-mutated children

NCBI:The Compassionate Side of Neuroscience: Tony Sermone’s Undiagnosed Genetic Journey–ADNP Mutation.

Local mom helping change the way doctors look at rare genetic syndrome linked to autism

Here’s to you, Sandra, scientist-mom extraordinaire!

 

Mindful Monday – How Do You Know if You’re Being Mindful?

People sometimes ask me how to know whether they are being mindful or not. Good question! It might sound as easy as saying “if you are, you’ll know it” or “if you aren’t, you’ll know it” but I don’t think that’s always the case. Here’s my quick checklist to help you decide.

 

Do you often find yourself:

  • Thinking “I wish . . . ”, meaning you wish things were different than they are
  • “I wish I could lose 10 pounds.” or “I wish my life wasn’t so hard.” or “I wish I had a better job.”

 

  • Thinking about the past and what you might’ve done differently
  • “I should have studied something different in college.” or “I shouldn’t have wasted so much time on that project.”

 

  • Thinking about the future, with some degree of anxiety
  • “I have so much I need to do!” or “I’m worried this won’t turn out ok.”

 

  • Thinking judgmental thoughts of yourself and others
  • “Nothing looks good on me!” or “I can’t believe she wore that.”

 

  • On auto-pilot, going through the motions with reduced awareness of your experience
  • “I don’t even remember driving home.” or “I do that with my eyes closed!”

 

  • Characterizing life/your day in an “either-or” way, i.e.: all good or all bad.
  • “I had a horrible day!” or “My life is a hard one.”

 

If you answered yes to any of the above questions, you’re in good company! We live hectic lives in an increasingly complex world where information comes at us from more sources than ever before, all vying for our attention. It’s no surprise we’re not more present, more fully aware.