The Autism Blog

The CARR Study – Impact of COVID-19 On Emotional Health

CARR Study (COVID-Associated Risk and Resilience)

Researchers at Seattle Children’s want to learn about the impact of COVID-19 on the emotional health of children and teens. This research study is for kids and parents.

Research is always voluntary!

This study might be a good fit for you if your child or teen is between 8 and 14 years old, and has autism spectrum disorder (ASD), attention-deficit/hyperactivity disorder (ADHD), anxiety, or none of these.

If you decide to take part in the research study, you and your child would fill out online surveys every 6 months for 2 years. Surveys focus on children’s feelings and behaviors, and on the ways COVID-19 might affect them.

Families who take part can choose to enter drawings for gift cards to thank them for their time.

 To take part in the CARR research study or for more information, please contact our study team at CARRstudy@seattlechildrens.org or by phone at 206-884-8256.

Please note: If you choose to comment or share this post, that may be visible to other people. Anything you might post is also subject to the policies governing this site and is outside the control of our research team.

CARR Study Flyer  CARR Study – Recruitment flyer

Autism 204: Supporting Community in Central & Eastern Washington

Please join us for Autism 204: Supporting the Autism Community in Central and Eastern Washington

April 15, 2021 7-8:30 pm

Welcome to the 1st ever Autism 200 class for individuals and families living in central and eastern Washington; presented by Central/Eastern Washington providers, professionals, parents and advocates.  

This virtual panel presentation will provide information about the unique issues and support available for the autism community in central and eastern Washington.  Topics that will be discussed include getting an evaluation and diagnosis, supports for families following a diagnosis, advocacy and communication with the public schools, available therapies including Applied Behavioral Analysis (ABA), autistic advocate and parent perspectives, and information related to resources. 

Date: April 15, 2021

Time: 7-8:30 pm PT

Registration is not required

Watch live on Seattle Children’s Facebook page

Following the presentation, it can be viewed on Seattle Children’s Facebook and will be added to Seattle Children’s Autism 200 YouTube channel within two weeks of the lecture date.

Moderator: Tracie Hoppis, Children’s Village, YakimaState Coordinator for Parent to Parent Program and lead for Yakima County Children with Special Health Care Needs Program

Speakers and Topics:

Jill Bross, MD, FAAP Parkview Medical Group, Grant County Getting an Evaluation and Diagnosis – what do you need to know

Melissa Brooks, RN, Parent to Parent Coordinator, the Arc of Tri-Cities Parent and Family Perspective

Tracie Hoppis, Washington State Parent to Parent Network Coordinator, Supervisor for Yakima County Children with Special Health Care Needs Program and Yakima County Parent to Parent, Parent-  Children’s Village, Yakima Where/how to get family support following the diagnosis 

Maria Pulido, Community Health Worker, Parent to Parent and Children with Special Health Care Needs Program- Children’s Village, Yakima  Barriers/considerations for Hispanic families and tips for getting what you need 

Lori Garcia, MSW, Family Resources Coordinator and Children and Youth with Special Health Care Needs (CYSHCN) Program Coordinator, Children’s Village, Yakima Supports available from Early Supports for Infant and Toddlers (ESIT) Program and CYSHCN public health programs

Sharon Loudon, Autism Consultant, Educational Service District (ESD) 105, Yakima How schools can help- ESD 105 model and general services/supports you can ask for in any district

Dana Stevens, ABD, BCBA, LBA, Director, Training and Education and Chief Clinical Advisor Northwest Autism Center, Spokane What’s ABA therapy, what to do while waiting for it

John Lemus, UW LEND Program, Vice President – Spokane Chapter of People First of WA An Autistic perspective- what’s important for parents and providers to understand about the lived autistic experience and how to support autistic individuals

 

Here is a link to the slideshow: Autism 204 Slides

The Gift of My Brother

Yoav laughing after telling a pun on his 52nd birthday

Yoav cracking himself up telling a pun on his 52nd birthday

As we continue our month-long celebration of Autism Awareness and Inclusion, we are excited to feature the powerful perspective of a loving sibling and their families journey with autism.  This piece is a potent reminder of special sibling relationships, the power of inclusion in the community and the brightness individuals with ASD such as Yoav bring to our world. Read full post »

Autism Guided Me Through A Pandemic

Autism affects an estimated 1 in 54 children annually, which represents a 10% increase over 2014.

All this month we celebrate and shine a light on all individuals with ASD and their families for the beauty and light they bring into our world. We welcome guest author Nicole Gorman, M.Ed. from the Alyssa Burnett Adult Life Center. Read full post »

Ask Dr. Emily – Going Back to School Support

Dr. Emily Neuhaus, the author of The Autism Blog's Ask Dr. Emily monthly series

Dr. Emily Neuhaus, the author of The Autism Blog’s Ask Dr. Emily monthly series, answers a reader’s question that we want to share with all our readers.

Welcome to the April edition of Ask Dr. Emily

Ask Dr. Emily is a monthly series on The Autism Blog where Dr. Emily Neuhaus, a clinical psychologist at Seattle Children’s Autism Center, answers a reader’s question.

We often receive questions that we want to share with all our readers. We welcome you to send us your questions and Dr. Neuhaus will do her best to answer them each month. Send your questions to theautismblog@seattlechildrens.org.

This month, Dr. Emily answers a reader’s question about how to prepare kids to go back to school with tips and resources from Andrea Lupas, Ph.D.; and Lia Thibodaux, Ph.D.

Question:

My kids are going back to school in person soon after a long time of learning at home! What do we need to know to prepare them?

Answer:

In a year full of changes, this is definitely another big transition for kids and their families! It’s great that you’re thinking ahead so you can ease that transition back to in-person education, especially since this shift can mean new health guidelines and procedures at school, a new schedule and sequence for the day, and lots of big feelings.

Fortunately, today we’re featuring guidance from two skilled psychologists – Dr. Andrea Lupas, Ph.D. (Postdoctoral Fellow, Seattle Children’s Autism Center); and Dr. Lia Thibodaux, Ph.D. (Postdoctoral Fellow, Neuropsychology Consultation Service). They’ve put together a wealth of strategies and resources to get kids and families back to school in the smoothest way possible.

 

How to Support Children Going Back to School during COVID-19

Andrea Lupas, PhD & Lia Thibodaux, PhD

More schools are beginning to move toward in-person learning. Some children may do well with the transition and others may need extra support. Below are suggestions for supporting your children as they go back to school. Click here to download a handout with these strategies plus sample guides to use at home.

Health and Safety  

Monitor your child’s health. If they are sick or have a fever over 100.4, do not send them to school. Temperature and symptom checks can be completed each day as a family to make these behaviors seem normal for children.

 

Before going back to school, teach children how to:

  • Distance from Others
    • Teach your child by using physical cues to show them what distance means.
    • Show them how to measure distance by stretching out their arms.
    • Hula hoops, jump ropes, or tape on the floor may also be helpful.
    • Teach kids how to wave and say “hi” instead of hugging.
    • The Center for Disease Control (CDC) now recommends keeping 3 feet apart in schools, instead of 6 feet. Washington schools are currently allowed to decide if they will distance 3 or 6 feet. It is important to ask your child’s school what they will do for distancing so that you can prepare your child.
  •  Distancing resources:

 

 

 

  • Wash Hands 
    • Handwashing should last 20 seconds. 
    • All parts of hands (under fingernails, thumbs, and the back sides of hands) need washing. 
    • Use songs to help children spend the full 20 seconds washing their hands. 
      • Example songs are the “happy birthday” song twice or the alphabet song. 

 

  • Practice distancing, masking, and handwashing at home before going to school. 
    • You can turn these into games to make them more fun! 
    • Building routines, rewards, and breaks into practice can help your child be successful. 
    • Visual timers or counting aloud/on your fingers are helpful tools to show children how long they should wash hands or wear a mask. 

 

Emotion and Behavior Support 

Going back to school can cause kids to feel happy, worried, or other emotions. It is important to:

 

Listen to Feelings

Build Routines 

  • Rebuilding school routines is helpful for going back to school. Work with your child’s teachers to make sure there is a routine at school, too.
  • Picture versions of routines or spoken instructions help children understand routines.
    • An example of a picture routine (visual schedule) is provided in the link at the end of this blog. Picture routines should be specific to children and their routines.
  • Practice these routines before the first day of school.
  • Tell children about any changes, do not surprise them! It can be helpful to discuss changes with teachers or other school staff.

Give Rewards 

  • Reward children for specific, good behaviors. Rewards can be praise, extra play time, or fun items. 
  • If children aren’t motivated to distance, mask, handwash, or go to school, caregivers and teachers can help build motivation with rewards.
  • Rewards can be temporary solutions until your child is used to new routines and rules.
  • For example, if your child does not like washing their hands, tell them they can have 5 minutes of game time for practicing handwashing. 

Provide Visuals

  • Visuals about distancing, where/how to wear masks, how to wash hands, routines, and rewards are helpful for understanding. 
  • Example of a visual reminder to wash hands, wear a mask, cover coughs and sneezes, and distance: https://www.cdc.gov/coronavirus/2019-ncov/downloads/stop-the-spread_poster.pdf
  • See “Sample Morning Routine Visual” below!
  • See “Sample Guide to Practice Wearing A Mask” below!

 Other Resources

https://www.iidc.indiana.edu/irca/articles/transitioning-back-to-school-during-covid.html

https://www.cdc.gov/coronavirus/2019-ncov/community/pdf/Back-to-School-Planning-for-In-Person-Classes.pdf

 

To Summarize:

  • Distance
  • Wear Masks
  • Wash Hands
  • Listen to Feelings
  • Give Rewards
  • Build Routines
  • Provide Visuals

These are suggestions that work well for most children. If your child is significantly distressed, consider working with a therapist of counselor.

Handout Link: Tips for Supporting Your Child Going Back to School During COVID