My son has autism. His name is Arthur and he is 13 years old.
I have found over the years that my life shrinks and expands in direct proportion to what kind of day my child is having. And nothing causes my world to contract more drastically than a disastrous outing to the grocery store with Arthur. The vibrant colors and overwhelming choice in the mustard section alone can be overwhelming for me. Imagine how the cereal aisle must be for Arthur.
When Arthur is in sensory overload, confused or frustrated, he becomes dysregulated. This can translate into a screaming, pinching himself or others, bolting toward exits, or knocking over displays. How do other shoppers tell the difference between a child with a disability behaving in a way that is consistent with his or her diagnosis or an out-of-control bratty kid with lazy parents? They can’t and I experience the disapproving glares and the “tsk-tsk” to prove it.
I’ve abandoned shopping baskets filled with groceries, lurched after propelled carts, apologized for watermelons that served as bowling balls and quietly placed half-eaten candy bars on the conveyor belt. Read full post »
Oh how they strike fear in the heart of many a parent of a child with autism. Lest you think I am suggesting “Bah Humbug” to it all, let me explain.
They are supposed to be about so many things –from religious and cultural significance to gathering of family and friends, sharing gifts and thanks for each other. Sounds simple enough.
Perhaps never is there a time though, when both expectations and disappointment are so high. As parents, we’re influenced by our own memories of childhood and by the barrage of messages from mass media about what we absolutely must have and do and be in order for that picture-perfect celebration. Read full post »
Autism and the Kindness and Unkindness of Strangers: Part 5 of 5
Today’s video is the final installment in a series of blogs that looks at the kind and sometimes unkind encounters that parents of children with autism sometimes face. Today we’d like to thank Suzanne D’Atri, a parent of a child with autism, for sharing her story about the kindness of a stranger who helped during her son’s meltdown on a plane.
After filming and hearing their stories, I noted themes emerging. How about you?
Did you notice how parents apologized for what they perceived as their fault for not planning more or better for every eventuality that might occur with their child? For having to quickly respond when the call was made to board the plane. For not taking the iPad away sooner when preparing for take-off. Read full post »
Autism and the Kindness and Unkindness of Strangers: Part 4 of 5
Today’s video is part of a series of blogs that looks at the kind and sometimes unkind encounters that parents of children with autism sometimes face. Today we’d like to thank Jennifer Di Bona, a parent of a child with autism, for sharing her story of a funny misunderstanding and how sometimes you just have to laugh. Read full post »
Autism and the Kindness and Unkindness of Strangers: Part 3 of 5
Today’s video is part of a series of blogs that looks at the kind and sometimes unkind encounters that parents of children with autism sometimes face. Today we’d like to thank Katrina Davis, a parent of a child with autism, for sharing her story of a trip with her son to the grocery store.
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