All Articles in the Category ‘Support’

Separating Autism from the Person with Autism?

Kat and Arthur 2015I crave information about autism. I am parent of a child with autism and I work closely with individuals and families living with this complex disorder. 

I read a lot. I listen to parents. I seek to understand those who are diagnosed. My cup is not full. I am still learning. 

There are so many different opinions, viewpoints, experiences, and perspectives that I must often remind myself that perception is reality. No two people with autism look alike. Nor do their experiences. So if I want to continue to learn and evolve, I need to keep an open mind so I can absorb the many facets of how autism affects us all. 

When I read this blog by Carrie Cariello, titled I Know What Causes Autism, I smiled. This is a Read full post »

Keeping Your Cool- Tips for Parents of Kids with Special Needs

Today we welcome guest author, Beth Crispin, fellow colleague and parent, who shares with us some valuable tips on keeping our parental cool when things heat up with our kids. For those who don’t know her, Beth is a health educator at Seattle Children’s and mom to two great kids:

“I am the parent of Mateo age 10, who was diagnosed with Asperger Syndrome in 2009, and Grace who is a typically developing teenager. We live in Shoreline Washington where we make it though our challenging days with a lot of flexibility and some laughter.” 

They say that it doesn’t matter if there is a real or paper tiger, the physiological response is the same. Your adrenaline starts to pump, your breath becomes rapid and blood rapidly flows away from the thinking center of the brain to the extremities (preparing you to run!). As a parent of a child who has explosive meltdowns, I often find myself dealing with the impact and aftermath of stress. While I can’t Read full post »

An Interview with Charlie Cotugno, Founder, Stories of Autism (SOA)

Charlie CotugnoI’ve known Charlie for years and it occurred to me that he knows many of our stories but we don’t all know his. I caught up with him recently and turned the tables on him. Here’s what he had to say.

Lynn: When did you first realize that you were a photographer?

Charlie: It’s hard to say when I first realized I was a photographer. I’ve had a camera in my hand since I was about seven years old and things have just organically progressed to where they are now. During and after college, I would do headshots and band photos for actors and musicians for a few extra dollars but I didn’t consider photography as something I wanted as a career. It wasn’t until 1994 that I decided this was something I wanted to pursue and really began learning all the technical aspects of the art. In 1999 I opened my business and began my career transition. Read full post »

What Is It Like to Live With Autism?

Today’s blog is written by Ben Moore. Ben, age 26, recently shared his insights about life with autism at Seattle Children’s Autism 200 class in November and we couldn’t get enough of his honest, heartfelt answers. Today he shares a little more.

What is it like as an adult living with autism?

Like, how do I even answer this? Let’s see… It’s hard at times. Sometimes there’s too much loud noises. Sometimes people speak too fast – their language gets scrambled and jumbled when I hear it. When I speak, often times what I intend to say is not what comes out of my mouth. Most times it’s hard to sustain my attention for prolonged periods. I can be blunt and easily hurt others’ feelings (I try really hard not to). Read full post »

Ten Myths About Parents of Kids with Autism

Sometimes parents of kids with autism are thought of as superheroes with super powers that allow us to power through day after day, year after year. Alas, ’tis not true; we are mere mortals who often muddle through our days after too many sleepless nights. While we appreciate the confidence others seem to have in us, we also want you to know the reality of being a parent of a child with autism.

1. We understand our child completely.

If I had a dollar for every time I couldn’t figure out my enigmatic daughter, I’d be a rich mama blogger. As a veteran parent, I know her better now than ever but that still leaves me woefully inadequate too many times to count. I remember once when she was much younger and was having difficulty breathing with croup. Her dad was out of town and her brother was asleep in the next room so I made my first 911 Read full post »