Author: The Autism Blog

Autism and Transitioning to Adult Primary Care- What, When, How?

Guest Writer: Crystal Wong, MD (UW Family Medicine)

A good primary care doctor is worth their weight in gold. When you’ve invested years of visits and developed a trusting relationship with your Pediatrician it can be difficult to give that up. However, eventually everyone becomes an adult. With adulthood comes an entirely different mix of medical concerns, healthcare maintenance regimens and therapies. Additionally the adult healthcare system is entirely different to navigate. Just as a dermatologist could not be expected to know how to perform brain surgery; a Pediatrician cannot be expected to perform all aspects of adult primary care. Everyone deserves an excellent primary care doctor to perform regular health care exams, keep track of ever changing health screening recommendations, be available to evaluate acute medical concerns, and help navigate our complex medical system. Read full post »

Autism Around the Globe

Guest Writer: Renee Poole

KfP team member and Kreet

My name is Renee Poole and I’ve been working in Seattle for the last four years in autism family services and in research. I started at ASTAR (Autism Spectrum Treatment and Research) Center in 2008, then moved over to Children’s Autism Center in 2009, and continued working there until this last December 2011.  I have loved getting to know the most amazing families as well as providers that offer some of the best service I’ve seen in health care.

Four short years seems to have taught me so much.  Before my work with autism, my biggest passion was culture and anthropology. Naturally, as autism became my new focus, my mind began to wander and try to link them both together.  I wondered how other cultures are diagnosing autism and if they even had a word for autism.  How are their communities supporting families and individuals with autism? Are people with autism accepted in the community or stigmatized?  Do kids with autism have a chance to go to school?  Do they know about weighted blankets and how amazing they are? (Yes, I too love a good nap with one!). So many things I began to wonder.

There was only one thing to doGo!

I had the unbelievable opportunity to travel with a local Seattle non-profit group called Knowledge for People (KfP) to Kathmandu, Nepal in July of 2011.  A group of ten Americans specializing in occupational therapy, special education, speech language therapy, and other autism-specific treatments and therapies came with us to conduct a twelve-day training course at a local Nepalese autism center.

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A Day in the Life- with Seattle Children’s Autism Center Nurses

With patients and families whose needs are 24/7, it seems a nurse’s work in never done. We had the chance to sit down with our nurses here at Seattle Children’s Autism Center to find out what a “day in the life” is like for them.  First, let’s introduce you to them. Read full post »

Autism and Insurance

Part 4 in our series  on Autism and Things We Would All Rather Not Think About is, drum roll please…. insurance. Health care coverage can be a complicated area that can (at times) feel like a barrier to accessing the care your child needs. As many of our families know, our children are complex and sometimes see many different providers. Here at the Seattle Children’s Autism Center we have nurse practioners, neurodevelopmental pediatricians, neurologists, speech and language pathologist, psychiatrists and psychologists all under one roof. What will be covered by insurance if your child has to see one of these providers? What about if you need to see two of them? Or several of them? Will the appointment be covered by your insurance? How much is this going to cost? Read full post »

Telling Your Child They Have Autism

Guest Writer: Karen Kaizuka, parent

Fear. That is the overwhelming feeling that rushes through me when I think about telling my son that he has autism. What do you say? How do you say it? Can we just not tell him?!!

Our little guy is 6. He was diagnosed with autism when he was 4. He is doing remarkably well. He is learning how to read. In fact, he is reading absolutely everything around him and is asking what words mean. We can’t drive down the road without him reading signs, “No Parking”, “Bridge Closed”. Read full post »