Archive for 2013

Prioritizing Treatment When Your Child Enters School

school busIf you are a parent of a young child with autism spectrum disorder (ASD), you may be juggling multiple services and interventions during the week (such as occupational therapy, speech therapy, social activities, applied behavioral analysis (ABA). You may be wondering how to gauge your child’s progress in these interventions. You may also be wondering how you will pare down these interventions once your child enters school. For instance, how much intervention is TOO much intervention? And how do I know which interventions are really making a difference and warrant continuing once my child enters school? Read full post »

Alyssa Burnett Adult Life Center to Provide Resources for Adults with Autism

We are very excited about this new resource for our community. Please see the official press release from July 25th below:

“Seattle Children’s Hospital today announced a $7 million gift from Charles and Barbara Burnett and Tessera to help launch the Alyssa Burnett Adult Life Program to provide lifelong services for people with autism and other developmental disabilities.

The donation includes the Tessera Center for Lifelong Learning, which will become the new home of Seattle Children’s Alyssa Burnett Adult Life Center. The Tessera Center was founded in 2004 by the Burnett family to provide young adults with autism spectrum disorder (ASD) and other developmental disabilities an opportunity to build skills that foster independence and social connections, and improve their overall quality of life.  Read full post »

How to Request Special Education Services after an Autism Diagnosis

My child just received a diagnosis of autism. How do I get support for him/ her at school?

The first step is to request a special education evaluation through public school. This request must be made in writing. The letter can be short and to the point, and should be delivered to the school principal or school psychologist. You can request this evaluation through the public schools even if your child is home-schooled or attends private school. Read full post »

National Housing and Residential Supports Survey

Voice your needs in the National Housing and Residential Supports Survey

Autism Speaks is hosting a national survey about the housing needs of adolescents and adults with autism in the United States. Their goal is to increase support for both the public and private sectors to expand housing and supports for individuals with autism.

The survey takes about 15 minutes and is designed for individuals with autism ages 14 and older and their caregivers. Voice your concerns in the first survey of its kind, but hurry, the survey will close on August 9th! Autism Speaks is hoping to have 10,000 responses by Friday (just 3 days to go!) and to share the results on October 1st.

National Housing and Residential Supports Survey (En Español)

FAQs about the survey  Read full post »

Designing a Community for Families Living with Autism

NeighborhoodIf you build it, we will come.

As my child, and we, get older, I’ve been thinking a lot about our living arrangement in the future. I wrestle with wanting her to live with us forever but knowing we won’t live forever. I see and feel the cumulative effect that years of care-giving, including regular, significant sleep deprivation, has had on us. I know that it would be good for her and us to have some separation, some distance, in the same way our son, who is going off to college in the Fall, will have.

In a perfect world, there would be many options from which a family could choose. But what I see “out there in the community” now is far from perfect with very few options available for a large group of soon-to-be young adults with autism. Read full post »