The Autism Blog

Mindful Monday – Color Me Calm

 

One easy way to help self-regulate when feeling overwhelmed with a flood of thoughts or feelings is have a focal point to help screen out the brain clutter. A mantra (word repeated over and over) in meditation serves this purpose. How about when you’re in the midst of your busy day and can’t take a break to sit and meditate? Try a mini-meditation!

A focal point might be a repeated word (“driving”, “breathing”) or it could be a color (such as green or blue when you feel a need for calm, yellow when you need focus) or it could be a sound (a bell or chime) to gently remind you to slow down in mind and body. Give it a try!

Parallel Paths: Our Life with Autism

Ten years ago, as a new employee in the department of Psychiatry and Behavioral Medicine, I was asked by a colleague to present with her to a group of trainees.

She was to cover diagnostic evaluations and I was tasked with discussing the impact of autism on families. How on earth would I manage to accurately capture the daily challenges that often are not observed in brief clinic visits?

My hope was to help them to “get it” meaning to see just how difficult it was.Short of suggesting we hold the session in my home for a first-hand look, I decided to make a video I called, “A Day in the Life with Autism” 24 minutes representing 24 hours in our unconventional life. It was well-received and since then I have been asked to share it with many different providers and students at Seattle Children’s and the University of Washington.

So much has changed in the past decade that it felt time for an update. This time though, I wanted to capture the bigger picture of our life and the lessons learned not only for providers but for parents who walk this path too.

Savvy Mom Moves Science Forward: ADNP and Autism

Parents of kids with autism typically are told that we do not know the cause of it. For some, we eventually do and often it is at the insistence of parents that we figure it out.

Sandra Sermone knew there was “something” with her son and persisted in finding clues and then answers to what “it” is – a rare genetic condition that underlies his autism diagnosis. Taking matters into her own hands, she found a researcher in Israel to help and formed a group of fellow parents whose children have this condition. From there, she began to look for common denominators amongst their children. To read more of Sandra’s incredible efforts, check out these links to her scientific paper and a news story on her family:

NCBI :Premature primary tooth eruption in cognitive/motor-delayed ADNP-mutated children

NCBI:The Compassionate Side of Neuroscience: Tony Sermone’s Undiagnosed Genetic Journey–ADNP Mutation.

Local mom helping change the way doctors look at rare genetic syndrome linked to autism

Here’s to you, Sandra, scientist-mom extraordinaire!

 

Seattle Children’s Celebrates Autism Awareness Month

April 2nd is World Autism Awareness Day

Seattle Children’s Autism Center, Alyssa Burnett Adult Life Center, and Seattle Children’s Autism Center Research team are lighting it up blue to celebrate!

 

 

 

 

 

 

The Autism Blogcast with Jim and Raphe – April Edition

News Flash: The April edition of The Autism Blogcast, featuring autism experts Raphael Bernier, PhD and James Mancini, MS, CCC-SLP.

In an effort to keep you up to date on the latest news in research and community happenings, we welcome two of our favorite providers best known as Jim and Raphe, the autism news guys.

These two have too much energy to be contained in written format so our plan is to capture them in 2-5 minute videos that we’ll post the first week of each month. We welcome your questions and comments. Tell us what you think of our dynamic duo!

In this edition of the Blogcast, our reporters discuss autism awareness activities in the Seattle area, and prevalence rates.