I’m so confused.
As the parent of someone with autism, being confused is not new to me. Autism is confounding for the best and brightest among us. Just ask the top researchers and providers in the field. And with few solid answers, questions abound.
Old questions persist about what causes autism and what the best-fitting treatment is for each child. It seems we’ve moved past some of the early controversy about what causes autism and have separated the “wheat from the chaff” when it comes to evidence-based treatment. With advances in genetics, we’re getting closer to being able to target treatment to a child’s unique profile.
With broadening of diagnostic criteria to include those “on the milder end of the spectrum” came new questions about whether autism is a disability or a personality difference. Some self-advocates declared themselves “autistics” and turned people-first language upside down while others voiced that their Read full post »
This month’s Autism 200 Series lecture “Autism 211: “If I Had Known Then What I Know Now” – A Panel of Parents of Older Children and Young Adults with ASD” will be held next Thursday, November 19th at Seattle Children’s Hospital in Wright Auditorium from 7 to 8:30 p.m. and led by Katrina Davis, family advocate, at Seattle Children’s Autism Center.
Join Seattle Children’s Autism Center’s family advocate, Katrina Davis, and a panel of veteran parents who will offer an intimate and personal look into their journey raising a child with autism. Parents will share their perspectives, experiences, challenges and joys. What helped? What did not help? What would you do differently? What advice do you have for new parents? Audience participation will be encouraged.
There is no need to register in advance to attend. These classes are designed for parents, teachers and Read full post »
A few nights ago I had the chance to attend the Seattle premier of the documentary film How to Dance in Ohio. What a treat! The film, set in Columbus, Ohio, follows three young women with autism as they prepare for an upcoming spring formal. The formal is a planned opportunity for the girls and other group members to practice everything they have learned throughout a 12-week social skills therapy group. The film takes us through some celebrated rites of passage many young people encounter as well as a look at what transitioning to adulthood looks like for these young women. I was invited to meet the director, Alexandra Shiva and producer, Bari Pearlman, to find out more about the making of this lovely film that is sure to leave you feeling close to the characters as they navigate their fears and worries of the unknown bag that is ‘growing up’.
When asked why make a documentary about autism, what impressed me most, was the filmmakers’ ability to see that this was a film about one slice of autism. The documentary very clearly marks that the social skills group the film follows is made up of individuals with high functioning autism. The clients in Read full post »
In honor of Autism Awareness Month we invited our readers to share their stories with us. We are sharing the stories throughout the month of April. Today’s story is from 13-year-old Elly.
Autism is like a person knocking at your door, but instead of opening the door, you just listen to the knock. As it grows louder, and stronger you… grow more stressed, and upset. Every knock is an event involving autism that just breaks you, makes you cry, makes you hurt. The breaks between each knock are the happy times, laughing, forgetting autism is really there.
My twin brother, Trevor, has Autism.
I sometimes wish life had a remote. I would be able to rewind our birth, and backspace the Autism. It really hurts. Not having that sibling relationship. Sometimes it feels like nobody understands, what it’s like to feel alone. Read full post »
Dillon is a happy thirteen year old young man with significant behavioral challenges who recently moved to a group home. His mom Sara shares their story with us today.
Lynn: What led to your decision to seek out of home placement?
Sara: I felt that out of home placement was something that would happen around age 18, but for us it came five years earlier than I had expected. My son Dillon is non-verbal, and a joy all the time, except for when he was screaming and biting himself, and later screaming and biting himself while attacking me. It was hard to determine the precise point at which my own lack of sleep and lack of ability to care for him got to be so profound as to be dangerous for him, for me, for our mother-son relationship, for my other kids. When ordinary life is hard, and it continually gets more difficult in small increments, it is impossible to remember that there might be a line, let alone know when you have crossed it. And when other people tell you that you can’t handle this, it is easy to defend all your choices, defend Read full post »