Archive for 2017

Parent Training to Address Problem Behaviors of Youth with Autism Spectrum Disorder- This Month’s Autism 200 Class

This month’s Autism 200 Series class  “Parent Training to Address Problem Behaviors of Youth with Autism Spectrum Disorder” will be held Thursday, April 20, 2017 at Seattle Children’s Hospital in Wright Auditorium from 7 to 8:30 p.m.

These classes are designed for parents, teachers and caregivers. The topics associated with the majority of classes are applicable to all age ranges and for a wide variety of children diagnosed with autism.

As many as 50% of children with autism spectrum disorder (ASD) exhibit behavioral problems such as tantrums, noncompliance, and aggression. These behaviors interfere with the performance of daily living skills and may also amplify caregiver stress.

“I feel like I am walking on eggshells, worrying that the next thing I do is going to set my child off”

“All those strategies that worked with my other child(ren) don’t seem to work with her.”

The challenges parents face in raising a child with ASD has sparked interest in the use of parent training in this population, as it empowers parents to be the agent of change for their child. This presentation will review the prevalence and impact of disruptive behaviors in ASD and how parent training is a promising line of treatment for these challenging behaviors and will provide specific tips and strategies to dealing with disruptive behaviors.   Instructor for this class will be Karen Bearss, Ph.D.

Mindful Monday – Color Me Calm

 

One easy way to help self-regulate when feeling overwhelmed with a flood of thoughts or feelings is have a focal point to help screen out the brain clutter. A mantra (word repeated over and over) in meditation serves this purpose. How about when you’re in the midst of your busy day and can’t take a break to sit and meditate? Try a mini-meditation!

A focal point might be a repeated word (“driving”, “breathing”) or it could be a color (such as green or blue when you feel a need for calm, yellow when you need focus) or it could be a sound (a bell or chime) to gently remind you to slow down in mind and body. Give it a try!

Parallel Paths: Our Life with Autism

Ten years ago, as a new employee in the department of Psychiatry and Behavioral Medicine, I was asked by a colleague to present with her to a group of trainees.

She was to cover diagnostic evaluations and I was tasked with discussing the impact of autism on families. How on earth would I manage to accurately capture the daily challenges that often are not observed in brief clinic visits?

My hope was to help them to “get it” meaning to see just how difficult it was.Short of suggesting we hold the session in my home for a first-hand look, I decided to make a video I called, “A Day in the Life with Autism” 24 minutes representing 24 hours in our unconventional life. It was well-received and since then I have been asked to share it with many different providers and students at Seattle Children’s and the University of Washington.

So much has changed in the past decade that it felt time for an update. This time though, I wanted to capture the bigger picture of our life and the lessons learned not only for providers but for parents who walk this path too.

Savvy Mom Moves Science Forward: ADNP and Autism

Parents of kids with autism typically are told that we do not know the cause of it. For some, we eventually do and often it is at the insistence of parents that we figure it out.

Sandra Sermone knew there was “something” with her son and persisted in finding clues and then answers to what “it” is – a rare genetic condition that underlies his autism diagnosis. Taking matters into her own hands, she found a researcher in Israel to help and formed a group of fellow parents whose children have this condition. From there, she began to look for common denominators amongst their children. To read more of Sandra’s incredible efforts, check out these links to her scientific paper and a news story on her family:

NCBI :Premature primary tooth eruption in cognitive/motor-delayed ADNP-mutated children

NCBI:The Compassionate Side of Neuroscience: Tony Sermone’s Undiagnosed Genetic Journey–ADNP Mutation.

Local mom helping change the way doctors look at rare genetic syndrome linked to autism

Here’s to you, Sandra, scientist-mom extraordinaire!

 

Seattle Children’s Celebrates Autism Awareness Month

April 2nd is World Autism Awareness Day

Seattle Children’s Autism Center, Alyssa Burnett Adult Life Center, and Seattle Children’s Autism Center Research team are lighting it up blue to celebrate!