Archive for 2015

A Conversation with My Younger Self- Part 3

Reflections from Jim Sturms, parent

It is advice, a regret, and a thankful for what I now have.

Find your Inner Ring

Before Carter was born, we had a great circle of close friends that were the backbone of our social life – parties, weekend trips, recreational sports, dinners, etc.

We saw these people every month or even more frequently. They were our “inner ring” of social support.

Then we started having kids and the circle started to break apart into the “With Kids” and “No Kids” rings. We still saw everyone, but the folks with kids stayed closer to each other because we were all doing “people with babies” things. Our inner ring naturally shifted to the “with kids” subset and grew naturally from the parents we met at preschools and the like. The “no kids” people moved to an outer ring – our lives didn’t connect as often. A natural part of the transition to family life. Read full post »

A Conversation With My Younger Self- Part 2

An Interview with Parent Susan Sturms

Lynn: With the advantage of hindsight, what advice would you give to yourself as a younger/less experienced parent, newer to your child’s diagnosis?

Susan: First, I would be more inclined to give myself words of comfort and encouragement than to give myself words of advice. I would say, “Be kind to yourself”. Time spent researching therapies is important; time spent advocating for your child with the school system is time well spent; time spent interviewing and hiring behavioral therapists that are a good fit for your child and your family is a top priority. But time spent getting to know your child and creating happy memories of just being together is the most valuable investment of all. You are on a journey to a deep and beautiful understanding of the value of a human life. I won’t lie – it is difficult, painful, and lonely at times. But it will also include times Read full post »

A Conversation With My Younger Self

The title of this blog series is “A Conversation With My Younger Self”. We wondered what parents and providers would say to their younger selves having the wisdom of hindsight and if there might be any words of wisdom our younger selves might have for us today. We begin with providers. 

Anita Wright, Speech Pathologist

As a young professional, there was a lot I didn’t know or understand about autism.  I should have taken more time to describe to parents the strengths their child exhibited, not just the deficits, not just the worrisome behaviors.  I would have helped parents recognize and emphasize the positive aspects of their child and point out how we can build on those strengths to broaden the child’s skills in other areas.  

As a parent, I’d remind myself not to be too quick to give up on teaching new things, even when the going seems incredibly slow.  Time and persistence on a parent’s part can sometimes bring surprising Read full post »

Autism Study Reveals New Information

Dr. Raphael Bernier

Dr. Raphael Bernier

A paper published this week in Nature Genetics found that some children with autism are more likely to have inherited gene mutations most often occurring from mothers to sons. Dr. Raphael Bernier, clinical director of Seattle Children’s Autism Center and an investigator in the study, discusses this further on Seattle Children’s Hospital blog, On the Pulse.

Learn how your family can participate in research at Seattle Children’s.

Or email SCACResearch@seattlechildrens.org

Mind Full or Mindful?

The Overstuffed Mind of Parents of Kids with Autism

When my mind gets overloaded and feels as if it will explode, I often imagine taking it off my shoulders and shaking it out the way I empty my overfilled backpack when trying to find my keys that have sunk to the bottom.

Ah, if only it were that easy.

Parents of kids with autism have minds full of stuff – the stuff of their crazy busy lives – that include so much more than the average human being. To mention just a very few of the things that simultaneously occupy the brain of said parent: therapy appointments, IEP meetings, prescription refills, data on behavior-to-hopefully-be-changed, field trips, social-skills-improving play-dates, grocery lists with the five things a persnickety kid will eat and mama/papa-needs-a-break camp applications.

And the list goes on and on. Read full post »